About Us
Our Vision
We want to ensure that every child in South Africa who has Rett syndrome, receives a correct diagnosis and the adequate support and required resources.
Our vision is to create awareness of Rett syndrome in South Africa because together we are stronger.
Rett SA is currently in the process of registering as a Non-Profit Organisation and a Public Benefit Organisation.
Meet Our Team
Dionne Snyders
General Operations Coordinator
Mother of Hannah
Kerry Craukamp
Family Support, fundraising and Community Engagement Manager
Mother of Abigail
Deidré Barnes
Project Co-ordinator and Marketing
Mother of Abigail
Board
Dionne Snyders
Chairman of the board
Marco Pretorius
Vice chairman
Kim Jones
Treasurer
Sue Van der Linde
General Boardmember
Marelie Landman
General Boardmember
Sponsors and Alliances
We would like to acknowledge that as a small organisation, we would not be able to realise our vision in isolation. Therefore we are thankful to all our sponsors and alliances for their time and contribution.
Our Sponsors
Rehabtronics
Neocom
Rare Diseases South Africa
Nova
Lenovo
Hope Studio
Inclusive Solutions
Alliances
Iris House Children’s Hospice, Capetown
Balance Therapy Centre
Baseline IT
